This year's event is postponed until
Talia Scheller is a vibrant, caring and incredibly giving nine-year-old girl who has a rare, potentially fatal, metabolic disorder called Methylmalonic Acidemia (MMA), that severely compromises kidney and liver function.
She also has a rare Progressive Neurodegenerative Disease that has no cure, no medication, and no treatment to stop or slow its progression. The latter is destroying neurons in her cells located in the cerebellum, near her brain stem.
In addition, Talia’s mother, Angela, has Cavernous Hemangioma (brain bleed) which will require future surgical intervention.
Talia’s conditions present many challenges: vision, cognitive ability, GI motility, sleep apnea, mobility, expressive & receptive language, an enlarged liver, and periodic seizures. In addition, Talia has two other life threatening conditions - Neutropenia and Hypotonia. The former affects her ability to fight off viral/bacterial infections for which a simple cold can be life threatening! The latter causes low muscle tone resulting in frequent falls. This requires her to wear leg AFO’s (leg braces) to limit the risk.
All of these maladies contribute to her need to use a specialized wheelchair and to make her surroundings more adaptive.
Despite all that taxes Talia’s life, she insists on helping others with like challenges. She does this through her summer lemonade stand. All her proceeds are donated to the Ronald McDonald House and other charities!
That's some great tasting lemonade!
Now it’s our turn...
Will you help us help Talia and family?
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Tournament Costs $250 Singles |
Event Schedule 9:30 Registration |
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